I titled this as “Day 1” because this is the first day as being diagnosed as having CML, Chronic Myelogenous Leukemia.
This day started off crazy. Last night and into early this morning we got over 4 inches of snow. Roads were closed and almost all business were closed, including my Oncologist. My appointment was at 9:30 am and I started calling around 8 am to see if they were going to be seeing any patients today. To make a long story short, I was finally able to make an appointment for 2 pm today.
Due to the snow all the schools were closed and my wife was able to go to the appointment with me. The doctor sat us down and was very through. He went line by line and explained everything to us. He answered all our questions and made sure we understood. He had a since of urgency when he spoke and he knew without asking that I was deeply concerned with my health.
Several years ago this type of Leukemia was quite fatal. The survival rate was only three to five years. Now the survival rate is much higher with a 95 percent rate. I’m not liking the “L” word but if I had to choose which one I wanted I think this one would be it. A pill taken twice a day is not a cure but it will control the spread if they have caught it in time. We shall know this answer come Monday. I have a bone marrow biopsy Monday morning and this should tell me which stage I’m in.
If you are a praying person, I’d like for you to spend a moment or two saying a prayer not for me but for my wife and kids. I have a set of twin daughters, 16 yrs old and a 20 year old son who are taking this pretty hard.